this post was submitted on 18 Jan 2025
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Summary

Wedam Minyila, 19, is among the first to undergo a newly approved gene therapy for sickle cell disease, a condition affecting over 100,000 people in the U.S.

The $2.3M-$3.1M treatment, using CRISPR technology, offers a potential cure but involves intensive chemotherapy and significant risks.

Few patients have accessed it due to high costs, limited hospital capacity, and insurance hurdles.

The therapy represents a groundbreaking shift, promising relief from severe pain and improved quality of life for patients.

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