What was your experience finding out you had narcolepsy. Does your narcolepsy come in cataplexy flavor? I’m sorry that you’re dealing with that. It’s not fun.

I’m basically mainlining caffeine too though I don’t think it really helps, lol. I can sleep 6-20 hours and still be ready for a nap. I fell asleep driving once. The only time I ever feel normal is when I take Adderall.

My doctor referred me to a neurologist but I can’t get an appointment until next summer.

Not saying I have narcolepsy but I worry that I have some kind of untreated sleep disorder. I know someone who was diagnosed with narcolepsy but he also suffers from cataplexy.

[–] r4venw@sh.itjust.works 3 points 1 day ago (1 children)

I do suffer from cataplexy as well, yes.

I actually found out I had narcolepsy by doing a sleep lab for sleep-apnea as an adult. It kind of came as a shock since everyone else in my life thought I was just lazy as fuck. The ADHD diagnosis came years later.

I'm not an expert, but narcolepsy isn't the only outcome for what you describe. It could also be hypersomnia, I think

[–] Echolynx@lemmy.zip 2 points 22 hours ago (1 children)

How did you pursue the sleep lab? Hypersomnia is still ruining my life...

[–] r4venw@sh.itjust.works 1 points 18 hours ago

I just scheduled an appointment with my GP and told him I needed a sleep lab. Insurance covered most of it, I think. I'm a little fuzzy on the details since it was a long time ago. If you're in the US, you'll likely want to make sure you get the details from your insurance company (assuming you have insurance; if not they can get pretty pricey). If you're elsewhere, they'll likely be free or cheap