this post was submitted on 09 Nov 2024
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A DNA-testing firm appears to have ceased trading - without telling its customers what has happened to the highly sensitive data they shared with it.

Atlas Biomed, which has offices in London, offered to provide insights into people's genetic make up as well as their predisposition to certain illnesses.

However, users are no longer able to access their personalised reports online and the company has not responded to the BBC's requests for comment.

Customers of the firm describe the situation as "very alarming" and say they want answers about what has happened to their "most personal information".

The apparent disappearance of Atlas Biomed is a mystery - but it appears to have links with Russia.

Prof Carissa Veliz - author of Privacy is Power - points out that DNA is arguably the most valuable personal data you have. It is uniquely yours, you can’t change it, and it reveals your – and by extension, your family’s - biological strengths and weaknesses.

Biometric data is given special protection under the UK’s version of GDPR, the data protection law.

"When you give your data to a company you are completely at their mercy and you have to be able to trust them," Prof Veliz said.

"We shouldn’t have to wait until something happens."

top 22 comments
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[–] CosmoNova@lemmy.world 86 points 1 week ago

It's almost as if every single data expert and privacy advocate was right. How curious!

[–] jdw@links.mayhem.academy 49 points 1 week ago (3 children)

We need a federated DNA service.

[–] catloaf@lemm.ee 30 points 1 week ago* (last edited 1 week ago) (3 children)

And how do you suggest we federate our DNA to each other?

[–] Entropywins@lemmy.world 42 points 1 week ago (1 children)
[–] popekingjoe@lemmy.world 14 points 1 week ago (1 children)

Just a series of big ol' orgies.

[–] pastermil@sh.itjust.works 14 points 1 week ago (2 children)

Just like what our founding fathers had envisioned.

[–] skulblaka@sh.itjust.works 4 points 1 week ago

I don't know about the rest of them, but Ben Franklin sure envisioned some orgies. Attended a few of 'em too.

[–] ivanafterall@lemmy.world 3 points 1 week ago (1 children)

They didn't call it the Constitutional Cumvention for nothing.

[–] DancingBear@midwest.social 9 points 1 week ago

Fondling fathers

[–] Flocklesscrow@lemm.ee 10 points 1 week ago
[–] jdw@links.mayhem.academy 2 points 1 week ago

Federated DNA data storage service. My bad.

[–] 9tr6gyp3@lemmy.world 16 points 1 week ago (1 children)
[–] 667@lemmy.radio 23 points 1 week ago (1 children)

With AI generated crypto rewards

[–] Eezyville@sh.itjust.works 25 points 1 week ago (1 children)

The plot of Gattaca is getting closer and closer to reality.

[–] Flocklesscrow@lemm.ee 11 points 1 week ago (1 children)

nervously sweeps eyelashes off keyboard

[–] ivanafterall@lemmy.world 4 points 1 week ago (1 children)

You're gonna want to get some tweezers and collect those bad boys one-by-one, to be safe.

[–] Corkyskog@sh.itjust.works 8 points 1 week ago

Or just get some pets. If they can somehow pick my eyelash out from the billions of cat and dog hairs, then I commend them for their effort.

[–] Confused_Emus@lemmy.dbzer0.com 20 points 1 week ago

"most personal information"

And they just handed it over to some company.

It was 1,000% sold without authorization

[–] MonkderVierte@lemmy.ml 13 points 1 week ago* (last edited 1 week ago)
  1. Your browser has a "save" functionality, use it
  2. You can't trust companies with such data.