this post was submitted on 16 Sep 2023
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Researchers from Pritzker Molecular Engineering, under the guidance of Prof. Jeffrey Hubbell, demonstrated that their compound can eliminate the autoimmune response linked to multiple sclerosis. Researchers at the University of Chicago's Pritzker School of Molecular Engineering (PME) have developed

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[–] snowe@programming.dev 2 points 1 year ago (1 children)

Do you take humira or another medicine for it? I have AS too and it’s bearable with Humira for me. But yeah if this research leads to something that would be great

[–] redimk@lemmy.dbzer0.com 2 points 1 year ago (1 children)

Oof I've had an experience with these meds...

I used to take Humira for 5 years but my country stopped delivering it (I used to live in Venezuela), then I moved ti the US and started Humira again, but it was about 30-50% effective only, I still had a lot of pain

I then went through Cosentyx and Taltz, none worked. Then I tried Enbrel, same effectiveness, got it through a foundation. Healthcare didn't want to cover it and the foundation didn't approve me if I had Healthcare.

Got sick in the US, lost all my money (due to lack of money), so I spent the little I had saved to return to my country, moved to Brazil and I'm about to start Golimumab (Simponi) tomorrow, hopefully it works because I haven't gotten medication in 2 months and the pain feels unbearable.

Having said all this, if there is a speck of a chance that this helps people with AS and other similar conditions, it would make me happy. Having this kind of pain is unbearable.

Sorry for the long comment, I suddenly wanted to rant about this!

[–] snowe@programming.dev 1 points 1 year ago

Wow. You’ve tried a lot more than me. I just met a nurse in the airport and she said to try this drug she administers, but I can’t remember the name now… she did send me a link to their website though. But honestly I’m a bit suspicious of stuff like this. https://www.soleohealth.com/chronic-inflammatory-disorder/

But I mean, if you’re desperate then maybe give them a call, idk. Kinda seemed too good to be true, the story she was spinning for me.