ME/CFS (kbin)

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A place on kbin.social for those with ME/CFS. I made this during the reddit migration, just in case any of those with ME/CFS need a magazine on kbin. Posts, resources etc welcome. Check out our Microblogs section - a good way to get more fediverse content! If you are looking for basic resources, e.g. me/cfs organizations or fact sheets, there are some over at: - link for kbin = @cfs@kbin.social

link for lemmy= !cfs@kbin.social

founded 1 year ago

Trial By Error: Column in Time Magazine Calls for Halt to Biomedical Long Covid Research (virology.ws)

submitted 10 months ago* (last edited 10 months ago) by liv@kbin.social to c/mecfs@kbin.social

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By David Tuller, DrPH. Time magazine recently published an opinion piece that calls for an end to biomedical research for long Covid—based, it seems, on what the authors view as the ME/CFS precedent. The title: “How to End the Futile Blame Game Over Failed Long COVID Research.” Although research still has “a vital role” to play, they argue, it needs to be “a different kind” that “no longer focuses on biomarkers and mechanisms” because such studies “are sure to provide ‘promising’ but false leads and divert resources.” (The piece was adapted from a recent article that was published by STAT.)

via @ahimsa_pdx

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[–] Drusas@kbin.social 1 points 10 months ago

Starting off with assuming futility is a really helpful perspective.